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AstraZeneca, Amolyt Pharma to Elevate Rare Disease Treatments
AstraZeneca, Amolyt Pharma to Elevate Rare Disease Treatments
By MBN Staff - Tue, 03/19/2024 - 09:59
AstraZeneca's acquisition of Amolyt Pharma strengthens its commitment to expanding its rare diseases treatment portfolio.
https://mexicobusiness.news/tag/rare-diseases
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Pfizer’s Hemophilia B Gene Therapy Succeeds in Late-Stage Study
Pfizer’s Hemophilia B Gene Therapy Succeeds in Late-Stage Study
By Antonio Gozain - Mon, 01/02/2023 - 17:00
Pfizer’s gene therapy investigation proved to be superior to the current standard of care for adult males living with hemophilia B.
Rare Disease Cases in Mexico Warrant Closer Attention
Rare Disease Cases in Mexico Warrant Closer Attention
By Sofía Garduño - Mon, 10/17/2022 - 09:36
Despite Mexico’s long trajectory treating rare diseases, efforts are still needed to support these patients, says Ultragenyx’s Nicolas Linares.
Hemophilia Affects 5,000 in Mexico
Hemophilia Affects 5,000 in Mexico
By Sofía Garduño - Mon, 04/18/2022 - 15:37
The disease requires attention from both the general public and policymakers to boost early diagnosis and treatment.
Legislative Action Would Benefit Patients With Rare Diseases
Legislative Action Would Benefit Patients With Rare Diseases
By Sofía Garduño - Mon, 04/18/2022 - 10:07
Legislation and education are necessary to rapidly diagnose rare diseases and provide adequate treatment.
Cost Should Not Be the Only Focus of Healthcare: Ultragenyx
Cost Should Not Be the Only Focus of Healthcare: Ultragenyx
By Miriam Bello - Tue, 03/15/2022 - 16:17
The discussion regarding rare diseases should focus on outcomes and impact instead of cost, says Ultragenyx’s Nicolás Linares.
Mexico Needs to Prioritize Research on Rare Diseases
Mexico Needs to Prioritize Research on Rare Diseases
By Sofía Garduño - Tue, 03/01/2022 - 14:31
Mexico lacks updated data on rare diseases, in part because there is no official date for the restart of its National Census of Rare Diseases.
National Census of Rare Diseases to Improve Care Standards
National Census of Rare Diseases to Improve Care Standards
By Miriam Bello - Thu, 09/30/2021 - 13:30
Mexico is taking action to improve attention and care provision to those suffering from rare diseases. Learn more here
Tech as an Ally for Treatment Development, Adherence
Tech as an Ally for Treatment Development, Adherence
By Miriam Bello - Fri, 09/03/2021 - 11:25
Technological solutions that accelerate data analysis can help pharmaceutical companies identify solutions faster, says Takeda.
Biomarin’s Dwarfism Drug Receives EMA Approval
Biomarin’s Dwarfism Drug Receives EMA Approval
By Miriam Bello - Fri, 08/27/2021 - 13:18
The European Commission approved the use of Biomarin’s treatment for achondroplasia, one of the most common forms of dwarfism.

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