World Hemophilia Day
News Article
The disease requires attention from both the general public and policymakers to boost early diagnosis and treatment.
David López
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David López
David López
Rare Disease Expert
https://www.linkedin.com/in/david-l%C3%B3pez-garc%C3%ADa-38440240/
Legislation and education are necessary to rapidly diagnose rare diseases and provide adequate treatment.
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Nicolás Linares
Executive Director and General Manager
Ultragenyx Pharmaceutical
https://www.linkedin.com/in/nicolas-linares-mba-3a11755/?originalSubdomain=mx
The discussion regarding rare diseases should focus on outcomes and impact instead of cost, says Ultragenyx’s Nicolás Linares.
Scientific Research
News Article
Mexico lacks updated data on rare diseases, in part because there is no official date for the restart of its National Census of Rare Diseases.
national-cancer-institute-XknuBmnjbKg-unsplash
News Article
Mexico is taking action to improve attention and care provision to those suffering from rare diseases. Learn more here
Takeda-IMG-2021-Estefanía-Torres-
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Estefanía Torres
Therapeutic Area Lead
Takeda
Technological solutions that accelerate data analysis can help pharmaceutical companies identify solutions faster, says Takeda.
 Sam Moqadam on Unsplash
News Article
The European Commission approved the use of Biomarin’s treatment for achondroplasia, one of the most common forms of dwarfism.
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Fernando Sampaio
Country Lead and General Manager
Sanofi Mexico and Sanofi Pasteur
After bringing its personalized solutions and a vaccine production plant to Mexico, Sanofi is now developing and producing COVID-19 vaccines.
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